Pandemic restricting access to services for children with complex medical issues: UBC study

Parents of children with complex medical reduced their access to hospitals and schools

Black Press Media file photo

Black Press Media file photo

Families with children who have extremely complex or chronic medical conditions are struggling to find adequate support, according to the latest research by the UBC.

Children with chronic medical conditions have lost access to key services like physiotherapy or speech and language therapy, the August study found.

Physicians describe medically complex children as those who are born or become seriously ill soon after birth. They often require feeding tubes and ventilators, and are likely to be non-verbal. These children need care throughout their lives and require multiple specialists.

Research suggests that 30 per cent of the children’s parents avoided taking them to the emergency room in circumstances where they would normally have done so. From March until May, 60 per cent of the surveyed children stopped attending school. Parents were concerned over what their child might be exposed to.

The B.C. Ministry of Children and Family Development typically provides all medical equipment for children with a chronic illness. The ministry also provides co-payments for therapies, extra care to ensure the child’s parent can have a break, and allows support payments for licenced daycares.

Thirty-eight per cent of children’s parents were not able to access ministry supports to offset the impact of COVID-19 restrictions.

“The most surprising detail was from the B.C. ministry – most parents didn’t know about their support networks, or couldn’t access them even though they were advertised as key supports,” said lead researcher Jennifer Baumbusch.

“This had a huge impact on the parents’ physical and mental health.”


@janelle_swift
janelle.swift@castlegarnews.com

Like us on Facebook and follow us on Twitter.

Coronavirus

Get local stories you won't find anywhere else right to your inbox.
Sign up here

Just Posted

A vehicle incident eastbound on the Trans-Canada Highway in Langley at 264th Street is causing traffic in the area on Monday, Jan. 25, 2021. (Drive BC)
TRAFFIC: Eastbound Highway 1 vehicle incident in Langley

Traffic reduced to single lane eastbound

Cody Malawsky at the box lacrosse provincials in 2019. As the highly skilled player adds size he will dominate junior, predicts longtime coach Daren Fridge. (Tim McCormick/Special to The Langley Advance Times)
New addition to Langley Thunder has the genetics to excel at lacrosse, coach says

Cody Malawsky was selected first overall at the BC Junior A Lacrosse League Draft

Vancouver Giants forward Zack Ostapchuk has cracked the latest NHL Central Scouting ‘Players to Watch’ list (Chris Relke/Vancouver Giants)
Ostapchuk makes NHL list

Player with Langley-based Vancouver cracks latest NHL Central Scouting ‘Players to Watch’ list

A Fort Langley letter writer lays out why he disagrees with the Township’s suggestion to withhold permissive tax exemptions for churches that defy Provincial Health Orders (file photo)
LETTER: Township church tax move feels punitive, Langley man argues

Township looking at whether to give permissive tax exemption to churches holding in-person services.

Terrance Josephson of the Princeton Posse, at left, and Tyson Conroy of the Summerland Steam clash during a Junior B hockey game at the Summerland Arena in the early spring of 2020. (John Arendt - Summerland Review)
QUIZ: How much do you know about hockey?

Test your knowledge of Canada’s national winter sport

A woman injects herself with crack cocaine at a supervised consumption site Friday, Jan. 22, 2021 in Ottawa. THE CANADIAN PRESS/Adrian Wyld
Drug users at greater risk of dying as services scale back in second wave of COVID-19

It pins the blame largely on a lack of supports, a corrupted drug supply

Wet’suwet’en supporters and Coastal GasLink opponents continue to protest outside the B.C. Legislature in Victoria, B.C., on Thursday, February 27, 2020. THE CANADIAN PRESS/Chad Hipolito
‘We’re still in it’: Wet’suwet’en push forward on rights recognition

The 670-km Coastal GasLink pipeline was approved by B.C. and 20 elected First Nations councils on its path

Jennifer Cochrane, a Public Health Nurse with Prairie Mountain Health in Virden, administers the COVID-19 vaccine to Robert Farquhar with Westman Regional Laboratory, during the first day of immunizations at the Brandon COVID-19 vaccination supersite in Brandon, Man., on Monday, January 18, 2021. THE CANADIAN PRESS/Tim Smith - POOL
Top doctor urges Canadians to keep up with COVID measures, even as vaccines roll out

More than 776,606 vaccines have been administered so far

Cannabis bought in British Columbia (Ashley Wadhwani/Black Press Media)
Is it time to start thinking about greener ways to package cannabis?

Packaging suppliers are still figuring eco-friendly and affordable packaging options that fit the mandates of Cannabis Regulations

From the left: Midway RCMP Csts. Jonathan Stermscheg and Chris Hansen, Public Servant Leanne Mclaren and Cpl. Phil Peters. Pictured in the front are Mclaren’s dog, Lincoln and Peters’ dog, Angel. Photo courtesy of BC RCMP
B.C. Mounties commended for bringing firewood to elderly woman

Cpl. Phil Peters said he and detachment members acted after the woman’s husband went to hospital

Dr. Jerome Leis and Dr. Lynfa Stroud are pictured at Sunnybrook Hospital in Toronto on Thursday, January 21, 2021.THE CANADIAN PRESS/Frank Gunn
‘It wasn’t called COVID at the time:’ One year since Canada’s first COVID-19 case

The 56-year-old man was admitted to Toronto’s Sunnybrook Health Sciences Centre

An Uber driver’s vehicle is seen after the company launched service, in Vancouver, Friday, Jan. 24, 2020. Several taxi companies have lost a court bid to run Uber and Lyft off the road in British Columbia. THE CANADIAN PRESS/Darryl Dyck
Taxi companies lose court bid to quash Uber, Lyft approvals in British Columbia

Uber said in a statement that the ruling of the justice is clear and speaks for itself

sd
VIDEO: Mission drag racer scores 1st career win, sets world record, makes history in 2020

Justin Bond, founder and owner of JBS Equipment Mission, has break-out year

Most Read